Necrotizing Skin Infection
Flesh-Eating Bacterial Infection
Over the course of a year, my body and face began to fall apart and rot. A month of IVs of antibiotics killed it but still no official diagnosis to what I had.
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I found your video while searching for answers as to what is going on with my face. I can not thank you enough for sharing your experience. I am both relieved and terrified. I have a mental illness and have been told I am doing it to myself. Frustrated by doctors, I too went to a specialist and at the second visit he wouldn’t come near me, did not give me a clue to what he thought it was, no prescriptions, told me if it doesn’t get better in a year to come back. I have taken all kinds of antibiotics, prescription creams, nothing helps one bit. After listening to you I am going to make another appointment and demand testing to be done to find out what is eating my face. I know that is an awful thing to say, unfortunately that is exactly what it feels and looks like. I wish you all the best!
Since all of the extra nerve damage and extra medical bills could have been prevented if all the Drs that refused to take a biopsy just stopped pretending to be psychics and just did a damn biopsy... isn't that a prime medical malpractice red flag? Maybe you won't have to pay all those bills. Maybe the lazy condescending Drs can. Have you called up your State Bar Association just to see how many lawyers would bite? What a nightmare @.@ I am glad you are still with us. Has anyone else became infected? The medical neglect could have led to an outbreak. It probably did and no one is getting biopsied... O.O
finally someone takes a face swab! all that condescending crap from some of the doctors.. they are a pack of morons. are you SURE YOU HAVEN'T BEEN TOUCHING COWS? lol. oh man, THEY REALLY DO NOT KNOW YOU!
i agree, you go through so much, you really will start taking care of the issue yourself. "just give me the knife, outlook." yep, i hear you BIG TIME.
! i hope, that the nerve damage makes it so you have an even higher pain threshold, then you ever had before.
the side clips were cute.
rachel, you are even more beautiful then before. when i was a kid, i got a disease that only old people got, it was a "geriatric" disease. the doctors had never seen anyone so little get it. i was about 4 years old, and specialists from all over the world came to see me. i had biopsies taken to be studied, and would pull my pants down to show them the "biggest of the boils," no shame at all. they told my mom when the disease would go away, and she said, that to the day, it disappeared. i'm glad that i was just a kid, and only remember getting the biopsies (which didnt hurt even one bit, but i puposely screamed like i was being tortured, because in those days, if you screamed A LOT you got candy, when you left). heh i acted, like i didnt want the candy, so my mom took it and put it in her purse, then as soon as, we got out of the hospital, i started digging in her purse. heh. i didn't get a lot of sweets as a little kid. i was kind of happy that i had that disease. i got candy! heh
That is so horrible. Oh my god. The fact that they never properly identified the disease/bacteria all the way until now makes me wonder if they were at least able to check that all of it is really gone?
Your story makes me think of the Netflix show "Afflicted", with the difference that your condition clearly wasn't psychosomatic. I'm so angry that all those doctors refused you like that.
It’s also amazing considering any infection can be fetal if it gets to your heart (I believe that’s how that works) but it literally went everywhere but... pretty crazy! You’re one resilient person! I couldn’t even imagine surviving the mental part of it... you are a very impressive example of a human being 👍
Totally lack of duty of care! This is neglect. Very serious here in the uk! I’m hoping you can get some compensation for what you went through!
Particularly the physical body symptoms your had and not had it investigated. I’m Totally shook!
"if I was a betting man this would be my theory. ""The patient contracted this flesh eating bacteria while smashing eggs with her boobs. The doctor asks "How did it get on her face?" The patient transferred the bacteria to her face by an egg shell that was projectiled to her face by one of said boobs.""
That's all I got.
Did you take any trips to any very dry, especially desert environments before this happened? It sounds like you live in the south, which is fortunate for you because skin infections like exzema don't thrive well in very humid environments, and I've done tornado relief in Alabama, where the humidity was so strong you had to take a water break every 10 minutes to avoid aches and pains in the summer. But, speaking from experience, if you go somewhere really dry, lacking humidity, especially a desert, and then go back to a more normal humid environment it can be too much of a shock to your immune system and skin, in which you can get certain infections.
I've been getting a patch of urticaria around my booty every 3 months (like clockwork). I've had biopsy after biopsy & they still have no idea what's causing it. Allergy tests didn't reveal anything I didn't already know, allergic to Pollen, Oak, & Ragweed (Duh). The rash is insanely itchy & very painful if I scratch anywhere. My Doc wants to shoot me up with Xolair to prevent the next round of rash.
Oh my gosh I can't believe you had to go through so much bullshit! It was so obvious that what you were experiencing was not acne. How could all of those doctors before you ended up staying in the hospital be so negligent?! That's so infuriating!
That's insane. They should have swabbed you and checked for infections the first time you asked because being on antipsychotics reduces your white blood cell count and makes you more susceptible to infections.
As a paramedic I think a nail from the nail bed penetrated your skin and it introduced a flesh eating bacteria. In all honesty do you think your doctors treated you different like not taking your advice due to your schizophrenia diagnosis Rachel? I know of doctors and nurses that are biased to patients with any mental diagnosis?
THANK YOU FOR THE UPDATE! I was so worried Rachel, I'm no doctor just a paramedic and I could tell your pictures was not acne but some serious sub dura epidermis infection I hope it wasn't a infected nail on the nail bed because the leg wound looked different and like a infection start sight, like I said I'm only a paramedic not a doctor so I can't be sure. I'm so glad you are looking good girlfriend! I prayed for you daily. Have a great day Rachel and get fully well soon, I love you, Tom from Colorado🌹🇺🇸☮ p.s. I don't recommend urgent care centers, I recommend going to a ER in a nice neighborhood , from work experience delivering patients I noticed that they treat the patient the best, fast and acutely, urgent care is worthless if you ask me.
Thank you for sharing your experience with everyone! There's much to be said for a person knowing their own body and physicians listening.
The problem is often the doctors already have their time scheduled for them or they have a target amount of minutes to spend with each patient and if they don't keep to what is expected of them they are held accountable.
I'm not defending the doctors, I'm just saying that the problem goes much deeper than what it appears on the surface. Of course it doesn't help when a doctor is a pompous gluteus maximus.
Remember that whenever a doctor refuses to test you after you have asked for it, tell them to put it on your chart. Tell them you want it documented that you asked to be swabbed and they refused. Then check the document yourself heck maybe even take a picture of it. You knew there was something wrong and multiple doctors refused to listen, you very well could have died because of their incompetence. Next time get receipts so you can sue their asses off.
Yeah... I honestly am lucky that nothing worse happened. If my cheek had to be removed or I lost muscle movement due to the infection not being treated I would have considered following up in court. The only reason I didnt I think is because I pushed back against them so hard to keep testing me and kept going to different doctors till one finally put me in contact with Infectious Disease.
What a horror story...but your positive attitude makes it seem like it was just a common cold..if your body could match your spirit...u be Supergirl. Sorry u had to go thru this misery....hope u doing much better ❤
o boy, you got a tons of videos (luckily with thumb labels). not sure i watch eveything. I just found you as a me myself am kinda atracted to open minded talking. especially about life and more important stuff, also like to talk about psychology from a real point of view, like, there is nothing set - everything is uncertain and new.
And i guess well maybe .... its kinda weird. i heard about a new genes that many bacterias are incorporated within its original genome.
It happens because we as manking (food industry, human wastes), we teached bacterias how to evolve in envoirment with everyday antybiotics use, and second thread of evolve may be that our population and amount of human tissue pure mass is so huge, that bacterias that normally do not use us humans as source now such bacterias trying to include us. Be it by accident (that purely because contact with human is so common now) or by selecting evolution, where such contact is common.
Usually human response to a bacteria is rapid and onset is usually less then month.
Thats why doctors were so confused, it rly looked like a virus (that would eventually pass - rash - or is simply uncurable and typical for humans), or fungus origin (also it develops where immuSystem is stessed, but usually it passes as well) or just simple hormon changes (also usually it passes).
That is a weird case.
I have my own theories that if you look back from a yearish ago in my vids what was going on may have been related but no way to fully tell. As far as how I could have the bacteria so long (most of the infections last 2 weeks). I think my immune system just kept fighting and fighting it and eventually couldnt any more. And I am delicious.
“Our labs are correct”... emmmm, false positives/negatives are super common. I had an alkaline phosphatase enzyme result once that was in line with someone currently walking around with several broken bones, or if I were in poor shape as an 80 year old (and I was like 30).
Glad this crap finally got figured out.
It’s actually been way worse with all of this. My TD gets worse as I get weak and all this mess really sidelined me. Things like writing, cutting food, and typing are harder at the moment. And I cant grip things well so drop a lot. I dont take antipsychotics because they dont really work on me but I take 3 antidepressants
Right before I was called to go to Infectious Disease I had looked up online places you could go and just have tests run on you and pay all out of pocket. That was going to be around $3000 total but I was just hoping to find something.
Ugh, well I did have something bizarre and not normal but I was very upset I had to keep pushing for them to run tests. In JANUARY I told two docs that I thought I had a Staph Infection- but I didnt have a fever- through all of this my temp has actually been low so everyone kept saying it couldnt be an infection
Antidepressants are medications that can help relieve symptoms of depression, social anxiety disorder, anxiety disorders, seasonal affective disorder, and dysthymia, or mild chronic depression, as well as other conditions.
They aim to correct chemical imbalances of neurotransmitters in the brain that are believed to be responsible for changes in mood and behavior.
Depression Medications (Antidepressants)
These are the most commonly prescribed type of antidepressant.
Serotonin and noradrenaline reuptake inhibitors (SNRIs) are used to treat major depression, mood disorders, and possibly but less commonly attention deficit hyperactivity disorder (ADHD), obsessive-compulsive disorder (OCD), anxiety disorders, menopausal symptoms, fibromyalgia, and chronic neuropathic pain.
SNRIs raise levels of serotonin and norepinephrine, two neurotransmitters in the brain that play a key role in stabilizing mood.
Selective serotonin reuptake inhibitors (SSRIs) are the most commonly prescribed antidepressants. They are effective in treating depression, and they have fewer side effects than the other antidepressants.
SSRIs block the reuptake, or absorption, of serotonin in the brain. This makes it easier for the brain cells to receive and send messages, resulting in better and more stable moods.
They are called "selective" because they mainly seem to affect serotonin, and not the other neurotransmitters.