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Real Pain and 'Explosive' Brains | Fibromyalgia

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Fibromyalgia is not a well-understood malady, but scientists are making breakthroughs that could eventually help pin down both the causes and the cures. Hosted by: Hank Green ---------- Support SciShow by becoming a patron on Patreon: https://www.patreon.com/scishow ---------- Dooblydoo thanks go to the following Patreon supporters: azarus G, Sam Lutfi, D.A. Noe, الخليفي سلطان, Piya Shedden, KatieMarie Magnone, Scott Satovsky Jr, Charles Southerland, Patrick D. Ashmore, charles george, Kevin Bealer, Chris Peters ---------- Looking for SciShow elsewhere on the internet? Facebook: http://www.facebook.com/scishow Twitter: http://www.twitter.com/scishow Tumblr: http://scishow.tumblr.com Instagram: http://instagram.com/thescishow ---------- Sources: https://academic.oup.com/brain/article/127/4/835/398133 https://onlinelibrary.wiley.com/doi/abs/10.1016/S1090-3801(02)00072-1 https://www.eurekalert.org/pub_releases/2013-06/itd-fin061713.php https://www.healio.com/rheumatology/fibromyalgia/news/online/%7B5c8b7a47-6b83-4375-9f20-4fc233dcfff2%7D/study-dsm-5-could-not-be-properly-applied-to-fibromyalgia-patients https://www.ncbi.nlm.nih.gov/pubmed/24453056 https://www.bmj.com/rapid-response/2011/10/28/fibromyalgia-myth https://www.sciencedaily.com/releases/2018/01/180112132916.htm https://www.mdedge.com/psychiatry/article/63562/fibromyalgia-pain-disorder https://www.bmj.com/rapid-response/2011/10/28/fibromyalgia-myth
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Текстовые комментарии (539)
C B (42 минуты назад)
Was diagnosed 5 years ago. It's been HELL. Currently laying on my heating pad, now. It's hard to even type this, I'm SO exhausted 😣
h0len (6 дней назад)
I don't see why people would care if people with this disease were delusional or not. Essentially, either they feel the pain, or their brain tells them they feel it. Either way they still experience it...
Alyssa Rousonelos (11 дней назад)
I got diagnosed with Fibromyalgia a month after this video was uploaded. It seriously sucks. I wish we knew more about it, because it would be easier to manage if we knew exactly what we are dealing with. My pain is so physically crippling on some days that I've considered purchasing a cane for bad flare ups.
HITMANN 0061 (15 дней назад)
So basicly Fibro is the mental equivalent of an allergy. Instead of the immune system overreacting to harmless substances, the brain overreacts to harmless stimuli. That seems like a good analogy to me.
tinabeaner004 (20 дней назад)
I was just diagnosed today, at age 22. :(
Malka Ringel (25 дней назад)
It's absolutely NOT A DELUSION, I have been living with fibro since 2008, where I was very sick in hospital and diagnosed with this disease. It's an autoimmune disease. We live with it. Weather like rain, wet snow affects it. As does stress.
eedobee (27 дней назад)
People who claim to have fibro don’t have fibro, but they do have the symptoms. Fibromyalgia is too poorly defined, like “a case of the nerves”.
munbun75 (28 дней назад)
I needed this as a sufferer as fibromyalgia. Though I will say I rarely see the hope you say there is alot of. I haven't seen much improvement in the course of fibromyalgia treatmenta in the past decade and certainly not cures. You can't treat what you don't even understand.
Wade Garrison (1 месяц назад)
Thank you Hank. Through my job by review people's medical records and as a result of my ASD (Aspergers) traits I recognize Trends in people's medical records. Some of the trends that I recognize are that 98% of fibromyalgia patients are women. Most of them the have this diagnosis have either a long history of hormone or birth control treatment, or a surgical history that has thrown their bodies hormones out of whack. Of the few claims of men they have the diagnosis, they've also either undergone hormone therapy or had a surgery affecting their hormone levels in the long run. Other Trends are that there tends to be some somatic aspect to it, but I also feel like the pain is real, and in the veins. I believe that the veins are becoming stiffer, less flexible, more fibrous if you would.
Robert (1 месяц назад)
If anyone has chronic pain, you might find the work of Dr. Howard Schubiner interesting.
Ara cely (1 месяц назад)
I love that you did this video 💕 It has definitely been getting more recognition, but more than anything we need more research so that we can figure out how to help those of us living with it every day.
Grudge (1 месяц назад)
After having my 10 pound baby I got fever, then 1 month later got diagnosed with muscle brake down, 10 months later of pain. It was fibromyalgia
Dustin Hulett (1 месяц назад)
TakeTheRedOne1st (2 месяца назад)
Ehlers-Danlos Syndrome is commonly misdiagnosed as Fibromyalgia. I tell everyone I’ve met with Fibromyalgia to look into Ehlers-Danlos Syndrome just in case if you’re one of the ones who were misdiagnosed like myself b/c it happens very often.
Hannah-Maria Chisholm (2 месяца назад)
Please stop talking about psychiatrists and psychologists. Fibromyalgia has been proven to be linked to mitochondrial dysfunction. You can only get a fibro diagnosis from a rheumatologist.
Jay R (2 месяца назад)
Thank you!
Your Crazy Box (2 месяца назад)
Generation 3 with the fibromyalgia diagnosis here, it'll be interesting when they figure out the genetics.  I still have no hope for there being any major discoveries during my lifetime, and I'm ending the line with me. But it would be nice if basics, like confirming its real, being able to campaign for awareness and talk openly about in daily life without people being really weird or rude about it, getting real help from doctors instead of the eye rolls, came along at some point. Maybe this is hope for that.
WayToSkateKate (2 месяца назад)
I watch SciShow and Hank's videos regularly and I never, EVER would have thought to look here, at SciShow Psych, for a Fibromyalgia video. Hank, what the heck?! Fibromyalgia was classified for far too long as a psychosomatic condition. It's finally becoming recognized as a legitimate medical condition and people who suffer from it are at long last being taken seriously. I don't think you're aware of how horribly patients were treated in the past (and many still are) with being denied proper medical attention for this debilitating condition. Unfortunately, you're really doing a disservice by having this video under PsyShow Psych. I understand that your intent was to explain that it is *not* a psychosomatic illness but, unfortunately, the waters have been muddied by your inclusion of CBT as a viable treatment option for fibromyalgia. The very nature of CBT assumes that the sufferer is responsible for their own suffering. Simply look at the list of diseases formerly "treated" with CBT but which are now fully understood as physical medical conditions and you'll understand how harmful it is to a patient to be led down the CBT path. I am a huge supporter of PsyShow, and will remain so, but I respectfully disagree with the classification of this topic under Psych. DFTBA! 😉
Laura Gadille (2 месяца назад)
I always wondered if my chronic back pain is fibromyalgia
Rozzy Roo (2 месяца назад)
Who here is in imense pain rn 😂 🙋🏻‍♂️
FearingSadness _X (1 месяц назад)
Rozzy Roo (2 месяца назад)
I have fibromyalgia caused by Ehlers-Danlos Syndrome
1973ziggystardust (2 месяца назад)
I've had fibromyalgia since I turned 13 in 2010. I was subjected to the 'delusion' category by every, single specialist I saw. I continue to be subjected to this discrimination and it's hard to get any sort of treatment. I am glad that 8 years has developed and provided evidence that shows it actually exists. It's a disability and we deserve relief.
jessie james (2 месяца назад)
i feel sorry for these sufferers;. i suffer with sciatica and at times i feel depressed...but i dont think the pain is as bad as fibromyalgia...
lhx00x (2 месяца назад)
Pain speaks to me.
Braixtomp654 (2 месяца назад)
HarlotSenpai (2 месяца назад)
Unfortunately, "it's all in your head" seems to be a common thing people with chronic pain without a clear cause hear even from doctors. Even if it is, duh, it should be attempted to be addressed if it makes you feel miserable.
MeeM MaM (2 месяца назад)
I hate the seperation our minds and body have. Like, i can't tell my body to chill when having an allergic reaction or when fibromyalgia happens
István Sipos (2 месяца назад)
kids are playing (European)football in the schoolyard. enjoying it like crazy. but there is a lonely little fella, who is just watching them from a distance, sometimes walking a bit closer to the game, then backing off a little bit. the school psychologists sees the scene and wanna help somehow - hey! do you like football? - yeah. - well, then c'mon young man! join those kids! I'm sure they don't mind. - no. I really can't. - why not? - I mean... I kinda can. I just shouldn't. - why do you think so? - 'CAUSE I AM THE F GOALKEEPER!!! what I'm trying to say with this. Don't listen to the psychos! let some real doctors figure this out :- ) (KIDDING alert)
István Sipos (2 месяца назад)
kids are playing (European)football in the schoolyard. enjoying it like crazy. but there is a lonely little fella, who is just watching them from a distance, sometimes walking a bit closer to the game, then backing off a little bit. the school psychologists sees the scene and wanna help somehow - hey! do you like football? - yeah. - well, then c'mon young man! join those kids! I'm sure they don't mind. - no. I really can't. - why not? - I mean... I kinda can. I just shouldn't. - why do you think so? - 'CAUSE I AM THE F GOALKEEPER!!! what I'm trying to say with this. Don't listen to the psychos! let some real doctors figure this out :- ) (KIDDING alert)
Sydney Gassiot (2 месяца назад)
Fibro runs in my family but only carries between women... Specifically my mom and I. Thank you for bringing this disease to light. People have told me that its a fake disease, that its an "invisinle illness" and that I just need to change how I think and I will feel better.... I watched my mom suffer for YEARS before getting a diagnosis and even though I havent been diagnosed, I do present many of the same symptoms of her. As for the pain part...you build a tolerance ocer time... Until it builds and builds and buildes and then you break. In our case, our immune systems crash down, and then we go into severe boughts of pain and/or a mental breakdown. It sucks. It affects all of your life... And it's great that you're bringing it to light!
Amanda Dev (2 месяца назад)
Great subject, very interesting. TY scischow.
Kluleess (2 месяца назад)
Fascinating subject. Thank you team Scishow.
GTaichou (3 месяца назад)
If this is accurate, I wonder if anti-epileptic medications would help calm the over-response in the brain.
Christopher Wanha (3 месяца назад)
Fibromyalgia isn't real. Wait, sorry, you have a theoretical model? It's definitely real.
BetterLifeAhead (3 месяца назад)
On top of other difficulties related to chronic pain, pain medication is being insanely regulated and limited for people with chronic conditions in an attempt to stop ODs and addiction. The law is attacking the group that needs pain meds the most are the ones being kept from them the most. It's a human rights issue in my opinion
Caterpillar c15 6NZ (3 месяца назад)
My girlfriend has Fybro and possibly Lupus
Robin McKee (3 месяца назад)
Hank, I understand you are trying to raise awareness about Fibro, but putting this video on Sci Show psych you are contributing to an already stigmatized illness. Yes you talk about the non-psych elements but having one of the most influential people on the internet putting it in this category is going to cause a lot of people to just lump it in with conversion disorders, without even watching the video.
lf H (3 месяца назад)
Natural supplement Same-e helps the fibro pain. This is the only thing ive tried that has helped. Walgreens has it, buy one get one free.
Sheena Warecki (3 месяца назад)
We suspect I was born with what some are calling in utero fibromyalgia, and since im young still it was such a battle to get a diagnosis. There is also a suspected genetic component of fibro since my mother also has it as well as someone else said, things such as mental health issues like depression and anxiety. My specialist has also noted many of his patients myself included often have some form of learning disability like my adhd and some are, again like myself, on the autism spectrum. I just have to say thank you for sharing this. It gets really difficult to have to constantly tell people what wrong with me why I have a cane etc and my favorite "are you sure its real". Thank you Hank and SciShow thank you ❤💙💜
??? ??? (3 месяца назад)
Can you do a video explain why people get migraines
Robert Bennett (3 месяца назад)
My friend has this.
Adel Wolf (3 месяца назад)
Thank you, Hank. I was diagnosed a year ago, and must have been suffering for at least five years before that. Others have picked the nits I was going to. I just want to thank you for covering this.
Michael Exman (3 месяца назад)
Controversial diagnosis is an understatement.
Joshua Morien (3 месяца назад)
It sucks not being taken seriously by a doctor. Even worse when they dismiss you. And then YOU are the assholes if you're angry or upset.
Michelle Wood-Bradley (3 месяца назад)
Thank you
michael martin (3 месяца назад)
Very informative... Maybe you can tackle R.S.D (reflex sympathetic dystrophy) or the umbrella term C.R.P.S. (complex regional pain disorder). There must be a better solution to opioids, electrodes implanted in the spinal column@ the base of the skull, or bathing the spinal column w/ ketamine drip......
2000Betelgeuse (3 месяца назад)
Sounds like its a disease of the mind
Brian JOnker (3 месяца назад)
Wonder if their is a physical over reaction in their brain to other stimuli?
Daniel Gable (3 месяца назад)
I have a friend who has this condition. Now, my Mom did not have this condition, but when she told doctors that she was in pain, she was told that it was all in her head. It wasn't. In my Mom's case it was because she had a varicose vein going to one of her ovaries. In my friend's case, the fact that doctors thought she was imagining it resulted in a significant delay in a proper diagnosis, as it did with my Mom. @2:52 With my friend, an increase in pain is mostly associated with changes in the weather.
Sushi burger (3 месяца назад)
Thank you for making this educational video on Fibromyalgia. A lot of people either don't know what it is or choose not to believe it. Thank you so much for giving this disorder recognition and debunking the myth that it is merely 'all in our heads'.
René Price (3 месяца назад)
God I hate having fibro.
René Price (3 месяца назад)
Haven't watched yet but I'm already hyped.
Unam Zahra (3 месяца назад)
Can fibro cause hair loss !? P
Jennifer Piper (3 месяца назад)
I survive fibro every day. Some are good days, others are not. It's more than just an increased brain reaction though. The soft tissue damages easier and takes longer to heal. Anything at all including things like breathing, reaching or being still can result in an angry muscle reaction restricting movement for days and increasing pain levels. Muscle tension is unbelievable at times. You can watch the muscle crawl and tighten during cramps and spasms. You have to keep a healthy mental perspective, but there is most definitely an increased probability for soft tissue damage on a day to day basis. Hypersensitivity becomes an issue in other sensory perception too. My hearing is far keener than it used to be and my sense of smell has reached a level my husband lovingly calls "Spidey senses". More research needs to be done as each person experiences different levels and types of pain and pain related restrictions. Insomnia is another difficult side effect. It has literally been almost 20 years since I have slept more than two consecutive hours. The lack of sleep prevents important healing and muscular recovery that would normally take place during the bodies sleeping hours. Most of all it must be said that we are not hypochondriacs, and it is not 'just in our heads'!
KnightsWithoutATable (3 месяца назад)
Therapy can help with long term coping with the pain and fatigue. Antidepressants reduce the pain and promote better sleep, which reduces symptoms. It is not, however, a mental illness as most people understand them. There are many studies that have shown that the neurotransmitters in Fibro patient's cerebral-spinal fluid are out of balance. This, paired with studies that eliminate other possible causes of the disorder, has led the current scientific consensus that the cause or at least one of the major mechanisms of the disorder is neurological. Cymbalta was developed to treat Fibro and many of the medications that are used to treat depression have been shown help. They are also medications that alter the chemical balance in the brain and can have dangerous side effects (the weirdest one I have heard of is violent sleep walking, but it wasn't that much stranger than the others). The study you talk about in the video shows that more research is needed, but at least we know where to work.. You also left out two of the major symptoms of the disorder, perhaps because not every sufferer has them: neuropathic pain, which is different than normal pain. It feels different since it includes the pins and needles sensation you get when you foot or arm "fall asleep", the sensation of insects crawling on your skin, itching, numbness, and can even cause general pain along with these other sensations manifesting in parts of the body that no longer have nerves in them, like in teeth that have had root canals and fingertips that have been cut off. That's right, itching and pins and needles in your teeth can happen. Nerve damage, such as from high blood sugar, can also cause neuropathic pain, but it is caused by damage to the cells in the nerves, which is not present in Fibro. The other is problems with the digestive tract that are similar to IBS, but are typically not caused by the same kinds of foods as IBS and can even strike when triggering foods are not eaten. Being careful with what you eat and getting rest when you need it can help to reduce these symptoms, just like the others. Medications like Gabapentin and Lyrica can help help with the neuropathic pain and the general pain. Exercise, even something as basic as walking, when done regularly and lightly also helps all symptoms, if can exercise at all. A less common symptom is intolerance of heat, cold, or sometimes even both and some medications can make this worse.
Mok214 (3 месяца назад)
How about all the males who are Desert Shield/Storm Veterans? They have rates of fibromyalgia and Lupus that you wouldn't believe.
sameisauce (3 месяца назад)
Thanks so much for this one. I have fibro and it sucks ass, this was respectful and informative
B Blessed (3 месяца назад)
Joe diapenza. Our own minds can make us sick but at the same to make you well placibo nocibo yes i believe theres true cases
Lillian Swaim (3 месяца назад)
Misdiagnosis is an issue too, a friend of mine was diagnosed with this by an idiot primary care doctor and it was actually gallstones.
elsa Grace (3 месяца назад)
Fibro is an Autoimmune disease! You didn’t mention that once! I’m really angry about that. People with Fibro are misunderstood enough and you have added to it. Also what your saying about pain coming from outside sources such as a poke is not true of all Fibro patients. I have a friend who it’s true for. For me the pain is always there. Exacerbated by movement. I have a very high tolerance of pain from outside such as needles, bone marrow biopsy etc. I live with horrible pain every day so I hardly notice more added pain. FYI many people with Fibro go on to develop a second autoimmune disease. For me it is Sarcoidosis.
Holly Kurmis (3 месяца назад)
Great video, bud. My fibromyalgia keeps me awake all night long. I typically fall asleep at 6 or 7 am each day and for years. The slightest of pokes or bumps hurts deeply and intensly for a short burst of time. I have chronic leg pain with this, so sitting, standing, lying down, and getting up and down from positions... Well, it all hurts. The last two months have been so painful in general that I feel suicidal for short amounts of times per day...its just that excruciatingly and mentally exhausting. Love to all of us
darktimber13 (3 месяца назад)
You mentioned a study with only 10 participants but you didn't bring up the limitations of such a small study
Juanita Gutbrod (3 месяца назад)
Thank you. It’s so difficult to explain my case ndition to others in a short and completely accurate way. This video is very helpful in that mission. It 8s also difficult time find a factual video about fibro when you are first diagnosed.
Nightshade Kelly (3 месяца назад)
Y'all should do a video on EDS. Every one thinks its nothing and get no respect for a horrible problem! Invisible illnesses like fibro get so little respect and belief and its so anoyying when you have multple problems!!
Nightshade Kelly (3 месяца назад)
Welcome to my everyday painful life *dab*
VHS Projekt BLUE (3 месяца назад)
Female with electrical instability go figure....
AmzRigh (3 месяца назад)
I'm a little confused about the research you cited... You said they used a simulation to confirm what they were seeing in the subjects. But if the underlying causes aren't understood, how are they going to simulate the condition? I mean, if they built it on the data they collected in the study, then of course the simulation will reflect those results.
Jessica Park (3 месяца назад)
I think the over-diagnosis/mis-diagnosis by doctors and self-diagnosis by patients has led to the controversy and 'bad image'. It is unfortunate for those suffering from the condition as their difficulties are often ignored/belittled because of this.
Aevi Wright (3 месяца назад)
"From where you're kneeling it must seem like an 18-carat run of bad luck. But, truth is... the game was rigged from the start." It runs in my family, my dad was a walking source of PTSD and I got shocked into a coma with such a high voltage that it charred my skin into soot in all my joints and burst every blood vessel in my skin.
Bethan Haran (3 месяца назад)
I have fibro and it was so hard to get diagnosed especially because I am only 14 so it always got put down to 'growing pains' which feels nothing like the pain I get due to fibro, however ppl still don't believe me especially teachers as they think im just using it as an excuse
no way (3 месяца назад)
Its autoimmune t cell mediated
SaCeuran (3 месяца назад)
The argument against fibromyalgia being real is not that it's a delusion. The pain is very clearly real and not psychosomatic in origin. The argument is that its a trashcan diagnosis, not an actual disorder. The symptoms are nonspecific, the causes unknown, and the presentation highly variable. This suggests that fibromyalgia is not a disorder because it may actually be many disorders with similar symptoms, the causes of which medicine is trying to pick apart. In the mean time, patients are given a label for a variety of reasons: doctors want to be able to prescribe something to help which they can't do without a cause, or having a label eases a patient's state of mind, or just for paperwork purposes, or other reasons. Until researchers find a pathology, fibromyalgia is not so much a diagnosis as a description. While subtle, the difference is very important in medicine.
Entropic Order (3 месяца назад)
Please follow up this video with research into CRPS/RSD. I suffer dearly from this disorder! In a nut shell, your body's central nervous system turns against you. Wearing clothes is suffering, a cat rubbing against your legs is suffering, etc...
April Richards (3 месяца назад)
I was experiencing Fibro symptoms at 14, diagnosed at 15, been disabled since then. I'm 42 now and on SSI. Fibro runs in my family. My aunt has it and my grandfather's sister had it.
Raw Pet (3 месяца назад)
Please let there be more research. I'm tired of being tired and in pain all the time. Thank you for this video. Fibromyalgia sucks. Changed my life. ~Beth
botfan78 (3 месяца назад)
10 people with no variation in gender does not make a good sample.
Kaylee Deal (3 месяца назад)
My aunt has fibromyalgia and neuropathy plus migraines everyday. She is trying to get on ssd. Her fibromyalgia hurt thru her chest thru her arms and fingers. Has anyone had this symptom? Her migraines are everyday. Can anyone tell me what she can do?
john doe (3 месяца назад)
If people would quit faking ailments in order to get a welfare check, diagnosing ailments would get alot easier.
Bobby Goetz (3 месяца назад)
I like how you said "specifically" then named all three neurotransmitters!
Alana Moreno (3 месяца назад)
Do a video for those with fibromyalgia and narcolepsy!
AprilDawn Bennett (3 месяца назад)
Thank you Hank and everyone at the scishow team! I had to miss a big festival today because I was in too much pain and then to see this? I'm so emotional I'm crying! THANK YOU!!! I have shared this everywhere I could. This needs to be everywhere! Thank you so much! #dftba #nerdfighter #fibrowarrior #spoonielife #squish
Internet Hardman (3 месяца назад)
My mother suffers from Fibromyalgia, it’s definitely not a delusion. It’s a disability. And even if it was a “delusion” pain is pain even if it’s not caused directly, the same way people who have lost a limb can still feel pain and sensations such as itchiness where the limb used to be. Pain isn’t always to do with nerves, it’s how your brain interprets signals it receives.
Stan d. medina (3 месяца назад)
fibro is for pussys
Odonata (3 месяца назад)
Thank you for a wonderful explanation. Therapeutic, welcome, affirming, and life-changing!
Daloki (3 месяца назад)
Thank you for this! Back in the day, it took me from 1979 to 1987 to get the reason for my chronic pain diagnosed. In fact, I diagnosed it first when I first read about fibromyalgia and recognized every one of my symptoms there. Asked my chiropractor, who said yes and sent me to a rheumatologist, who said yes. I had been spang on. Eventually the condition went into apparent remission. But this video got me to thinking and suddenly a mystery illness that hit me last October, and lasted for months, made sense. The fibromyalgia had come back! Aching all over, severe weakness, debilitating fatigue... Eventually I lost so much muscle tone that I had to go into physical therapy. And yet not one doctor - nor I - ever considered FMS. I'd been in remission (at least partially) for so long it didn't even occur to me. Your discussion of recent studies is fascinating. One doctor who failed to diagnose me told me I had hypersensitive nerves - the most sensitive he had ever tested - and would just have to live with the pain. A neurologist performing an EMG shouted at me for crying at the excruciating pain. (He also failed to diagnose.) Now I want to know if there's a relationship between the explosive brain of fibro and exploding head syndrome! Thanks again. Great video.
David Allen (3 месяца назад)
I wonder regularly about wether or not malware exists in brains, given how much they act like computers. This disease sounds quite a bit like some hypothetical brain malware.
Annika Victoria (3 месяца назад)
Thank you. I developed fibromyalgia after having a painful life threatening autoimmune condition ravage my body, and it took years and years trying to convince doctors that I was in pain “when I shouldn’t be, because I was fine”. This was very validating. And gave me some hope!!
Audrey Winter (3 месяца назад)
My sister lost her uterus due to fibro, when it basically fell through - doesn't sound so psychological to me.
Fluffy Tufts (3 месяца назад)
I enjoyed this video! I would agree with others though...I have never heard of a psychologist diagnosing fibro?? I was told it had to be a rheumatologist or a neurologist.
Zhen (3 месяца назад)
Hank out here lookin real groovy, is it summer again?
Emily Jelassi (3 месяца назад)
Thanks for this video. But please, do a video on Complex Regional Pain Syndrome...the most painful disease known to science!!! Next month is CRPS Awareness month. I have both Fibro and CRPS..causes extreme pain. But thank you so much for making it clear that fibro isn't a delusion!
Natalie Gygi (3 месяца назад)
Thank you scishow psych for doing an episode. I would like to say that SOMATOSENSATION is literally how we experience every thing. Our brain is our processing center, and is how we perceive things, like touch, sight, position, pain, etc. It's literally everything. People mean it as an insult when they say it's all in your head. But they are right, because that is where our brain is. Fibromyalgia is incredibly real, and they are doing tons of studies right now. I suggest you watch a film called Unrest, that came out a short time ago, its about a persons personal journey with it.
Sophia Bryan (3 месяца назад)
Thanks for this. Dealing with a relatively recent fibromyalgia diagnosis and finding it hard to explain because i haven't gotten a straight answer from any of my doctors. So, this is really helpful.
Georgia Bence (3 месяца назад)
I had depression for years before I was diagnosed with fibromyalgia, and interestingly enough, I had a genetic test done and my brain has issues correctly producing/absorbing Seratonin, Norepinephrine and dopamine, as was mentioned. Thank you for covering this topic, and for saying there is hope and that people are actually working towards finding a cure. I developed symptoms when I was 18 (I'm 20 now) and it's hard to keep fighting everyday knowing that you will wake up in pain every morning. It's difficult to describe the level of pain people with fibro have to try to function through. I have many days where the pain is so bad I can't walk, sometimes the pain is so bad that it feels like my legs are breaking over and over again and all I can do is scream, my doctor even x-rays done to make sure they weren't actually broken. Needless to say, I needed a reminder that there is hope.
Elouj Time Reaver (3 месяца назад)
What is the difference between pain and delusional pain?
shiroikasumi (3 месяца назад)
Check out SciShow's video on sleep and look at the symptoms of sleep deprivation and then check the list of fibro symptoms. ..
Agent 47 (3 месяца назад)
I have Autism and epilepsy and lupus and fibromyalgia, plus a lot of other diagnosis. My life kinda sucks. Chronic pain, seizures, sensory overload, cPTSD... anyway please do an unbiased video on Autism and Autism Spectrum Disorders as well as ADD/ADHD and epilepsy and Sensory Processing Disorder!🙏🏻
Azzarinne (3 месяца назад)
It's so cool that you guys did an episode on this! 20+ years of testing has yet to yield a diagnosis, but this is looking like the most likely culprit. Unfortunately, it's bedtime, so I'll have to watch past the first 40 seconds tomorrow. XD
sillypinkewe (3 месяца назад)
Sci Show and Hank - thank you very, very much. This means a lot to me. Having severe fibro for so long, this video may be even more important than you might think. I’m a long time fan of the show and I can’t tell you how well you showed this disease: the science and the optics of it. We are often treated as crazy, pathetic, hypochondriac loonies - even by doctors - to have someone I admire (well some Show I admire, filled with science goodness) is a kind of sweet vindication. Thank you for taking it seriously and treating it with care. I have endured many kinds of pain - burns, shocks, broken bones, awake and sensate during a surgery I was meant to be asleep in, corneal abrasion, root canal without freezing (ppl with fibro are sometimes resistant to anaesthesia), and even cluster migraines and I must say - besides the surgery bit and cluster migraines that last a good day - fibro wears me down the most as it is constant and will never stop. Broken bones heal, burns scar, and luckily my eye is fine now (all my injuries hurt since I get them, at least once in a while) but fibro is all day every day and every night you lay trying your best to meditate into sleep beyond the pain. You adapt in little ways, finding coping mechanisms and plans to stay calm, but fibro never really listens. I am not asking for sympathy (most people that is their first reaction, which isn’t a bad thing - it is kindness) just wanted to say my reasons for finding this video good and important. So many people think it is “all in your head” or that we must be exaggerating. I have lost support group members to the disease because some people cannot love with the pain, especially if they don’t have a proper support system - and therein is the big issue of optics. Fibro is real and it’s nasty and it takes over everyone’s lives around it - to have people denying our suffering takes away support systems like friends and family that need to be told by the big important voices that it is real. I have lost many friends due to the disease.. it is too much for them or they don’t believe in it being real - “you have to be delusional - it can’t be that bad - you wouldn’t be able to survive it” - it is real and people CAN live meaningful lives with it - if they have support and if they are believed - life can get even better. To those new to a fibro diagnosis: it isn’t the end. You can be happy, you can prevail, you can make a life for yourself. After decades of living with it, I have learned the best things to do are meditation, walks when you can (even if it is two minutes or even thirty seconds, build up at your pace), treat yourself, and research the drugs doctors want to put you on. One sentence at a time. And for sleep - you will find what works for you - if not at first, you will. Maybe what works one week won’t work every week or even night - but keep at it. Keep a routine before bed. Don’t overdo exercise, moderation and carefulness go a long way. Don’t hate the pain, struggling only makes it worse. Accept it and work around it. Teach those around you what triggers you, how to gently hug you, how to help you. And most importantly - even if it is childish or silly - do things every day that make you happy like playing games (I am partial to video games when I can) - watching cartoons or soap operas - or even taking time to listen to music laying down in bed and thinking of your happy place.. do what makes you happy as often as you can. Much love and support is out there.
culwin (3 месяца назад)
Maybe fibromyalgia is caused by vaccines? /trollface

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